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Me trying to comfort a not-so-happy Adolf. |
I am again sitting in a quiet hospital room with a sleeping
Adolf as he recovers from his second surgery. The first surgery removed the
contractions and on Thursday Dr. Grossman preformed the skin grafts, which
means in addition to pain in his leg he suffers pain in his abdomen, where the
healthy skin was taken and placed on his legs. It is very important he remain
still so the grafts can heal properly, so he is hospitalized with very little mobility
for four nights. When he was brought into his room after the surgery, he woke
and immediately started crying again. It brought back awful memories of Monday
when he cried most on the day in pain. At least this time, I was more prepared
emotionally to handle the situation. I immediately asked the nurse to
administer additional pain medicine. She gave him some strong drugs that should
have knocked him out, but he continued to cry and then started becoming
hysterical. He screamed (in English) “Help me, Jesus! Help me!” In addition he
became slightly combative with anyone trying to calm him. I asked the nurses
for some anti-anxiety medicine to help calm his fears. They said they would
talk to the doctor about appropriate medication to give him. In the meantime,
it was horrible to watch him struggle. Eventually he fell asleep and most of
the first 24 hours post-surgery was spent between periods of intense emotional
outbursts, crying, and sleeping. The only time he smiled all day was when my
husband, “Daddy” and his brother “Uncle Laine” walked into the room.
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Eva watching over Adolf |
That evening my husband took Eva back to our house to gather
some personal items so she could stay at the hospital with Adolf for the next
few days. Just before they left, the nurses told us about the Hyperbolic
Chamber. It is a super oxygenated pressurized tube that burn victims lie in for
1 hour 10 minutes two times a day. It is supposed to help with the healing
process and make the skin grafts take hold faster. It is a clear tube with a TV
on the outside so patients can watch TV while breathing pure oxygen. Eva
explained to him the process and when we arrived in the room there was an
adorable little girl (about 8 years old) getting ready for her treatment in the
next chamber. She had a smile on her face and waved hello. Adolf responds well
to other children, so I think it helped him to see her so eager to spend time
in the chamber. They put a relatively calm Adolf into the chamber and my
husband, Laine, Eva left for home. I agreed to remain behind until she
returned. After about 40 minutes in the chamber, the nurses brought a
screaming, hysterical, Adolf into the hospital room. He was terrified and trashing
his hands about and trying to hit anyone that came close to him. Most of the
time his eyes were closed and when they did open up, I could tell his mind was
on a place far away from reality. I can only guess he was having recurring
dreams or images of his original trauma and abandonment. For years, Adolf had
to suppress the horror that he endured and with the renewed focus and pain in
his legs he was really struggling psychologically. As he screamed and thrashed
about I felt completely helpless. I didn’t have Eva here to talk to him. The
nurses were running back and forth between his room and the nurses’ station
trying to administer whatever medication they could give him to knock him out.
I really didn’t know what to do to calm him and bring his mind back to the
present. Before his surgeries, he used to go about the house singing a song in
Rutooro. I have no idea what it means, but I began singing it to him. It was
hard to do so as I was crying in the process, but slowly he started to calm
down and then joined in singing with me. When I would sing an incorrect word,
he would smile and say, “No, mama.” Eventually we got him transferred to his
regular bed and slightly calmed down. When Eva returned, I had to leave to take
care of my little ones at home. It was hard to leave, especially when he said, “No
mama. Stay here. Sleep here.”
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Adolf in the Hyperbolic Chamber with Eva, my husband, and me |
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The Hyperbolic Chamber. I might freak out too if I was stuck in this for over an hour. |
The next day I went to visit again not knowing what to
expect, and when I walked in Eva looked very tired and said he screamed all
night. He didn’t sleep at all and just screamed and cried. When he saw me he
started screaming again and I was more forceful with the nurses asking for medication
or a consultant with a psychiatrist. They administered very strong pain medicine,
but I truly believe he was suffering the psychological scars of his injury as
much as the physical scars. Again, they would see what they could do. His
teacher had dropped off some schoolwork, so I got it out and started working on
it with him. It really seemed to distract him and focus his mind on something
else. A few times he would start crying and I brought him right back to his
schoolwork and told him to focus on his problems. It was completely
heart-wrenching when I had to leave again. He had hardly smiled all day, and
when I said, “I need to go. I have to pick up Hunter from school.” He covered
his eyes and started crying. Not the hysterical cry as earlier, but a sad cry.
I leaned over his bed to give him a hug and he just started sobbing into my
shoulder. “Don’t leave mama. Stay mama. Please stay.” Sobbing and sobbing. I
wanted to hold him forever. I wanted to pick him up and rock him like a baby
and say to him, “You are safe, Adolf.” You will walk again in a few weeks and
no one is going to hurt you again.” There are so many things I wished I could
have said to him. It is so hard to love someone so much and see them hurting. It is even harder to not be able to
communicate with this person. I just hope he could feel my love for him. As
difficult as the moment was, I did have to leave. It took every ounce of my
willpower to walk out of that room. I knew my little ones needed me at home
because my husband is out of town attending the memorial services of his
brother.
I returned to the hospital today and Adolf was in much
better spirits. He actually smiled when I walked in the room! It was so
wonderful to see that smile again. Today I brought in a bad of coins and some
dollar bills and decided I would teach him and Eva about American currency. He
had a lot of fun with it, and kept trying to hide the dollars in his bed
covers. It was such a relief to have him in such better spirits.
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Adolf loving his lesson on American currency |
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For me personally, this has been a very hard week and I am
so thankful for my friends that have stepped in to help. My heart is in many
different places: with my husband and family at the memorial services, with my
four kids at home, and at the hospital with Adolf. If there ever was a time I
wished I could have a clone, it is now. With all that has been going on, my Christmas
shopping has been non-existent. I hope Santa is real, or my kids may not have
anything under the tree this year! This next week will be just as busy, but
hopefully filled with less sorrow and emotion: four singing programs, three
holiday parties, Kelly’s 5th birthday party and her birthday
celebration at school. I am truly
blessed that I have many people that I can call at the last minute and they do
whatever is necessary: pick up/drop off my kids at school, have play dates with
my kids, bring meals to us, loan us DVDs for Adolf, help with this blog, and messages
of encouragement. The list goes on and on! They are truly amazing. I would be
in the loony bin if I didn’t have them here for support. If you are reading this,
to my amazing friends I give you a huge “THANK YOU!” I love you.
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Before the surgery Adolf enjoyed decorating himself for Christmas! |
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Adolf driving himself down the sidewalk in his wheel chair! Nothing will stop this guy! |