Wednesday, January 30, 2013

Recovery and Physical Therapy



No tears this time…I promise! Things are going very well. We have packed so much into the last two months, that I wish I had a pause button! This month was filled with school, physical therapy, doctor appointments, and lots of new experiences for Eva and Adolf. We have also been eagerly anticipating and preparing for our trip to Tahoe with a departure time in 17 hours. (But who is counting?) 

Adolf continues to see Dr. Grossman on a weekly basis to check on the healing process. At the most recent appointment, he informed us Adolf may need an additional skin graft surgery on his left leg as it is not healing as well as he had anticipated. This was disappointing news as we had hoped we were past the surgery aspect of his recovery. Adolf has not done will with his previous surgeries and suffered from a lot of pain, stress, and depression. The time at the hospital was difficult for the entire family and I pray we do not have to endure that again.

A special orthopedist created custom removable splints to fit Adolf’s legs. He is required to wear them 23 hours a day and only take them off for showering and physical therapy. As he continues aggressive physical therapy, his muscles will get stronger and he will be able to gradually use them less frequently. His physical therapy has been quite intensive as well. He goes three times a week for an hour after school. We also have additional exercises at home to do three times a day. Overall, the physical therapy part of the recovery has been going very well and we are all pleased with the progress he is making. 

Part of Adolf’s physical therapy is to ride an exercise bike as it is good practice bending and straightening his knee. I thought, "If he can do a stationary bike, I should allow him to try his bike from Santa!" Last week, we put our “Kids at Play” signs in the street and I watched for cars as he practiced riding back and forth on our street! He loved his bike and was so happy! It was such an exciting moment for all of us! For years, Adolf has watched other children run, play, ride, and climb and as much as he tried to keep up these activities were a struggle. Finally, he was able to ride a bike like other children! It was such an amazing moment for me to see him and share in his joy. It is not a moment I will soon forget. I wish everyone that has been a part of his journey could have been there with him. This is the result of an entire world community coming together to help others. He still has a long way to go in terms of recovery for full range of motion, but two months ago, I never would have guessed he would be riding a bike already. 

Adolf riding his bike for the first time! This is the result of all the hard work of many people involved!
With my husband, Scott, gone for almost the entire month of January, there was a lot of extra work around the house with all the kids, and fortunately Uncle Laine and Eva really stepped in to help. Uncle Laine and his friend came out one Saturday and watched the kids all day so I could take Kelly and Hunter to two separate birthday parties. He was a great support for me the entire month as I could not always communicate with Scott, and helped with phone calls and texts to guide me through some rough days. We also met one Sunday at the Long Beach Aquarium and had a great time with all the exhibits. Adolf was so excited to experience everything that at first he just wanted to run through the aquarium, but we managed to slow him down and point out some interesting sea creatures. They also have a new penguin exhibit, and they were so cute! We loved watching them swim, dive and play together. There is also a bird exhibit that we could walk through and feed the birds. (Not sure how that fits in with marine life, but it was still fun!) As Eva was holding baby Hayden a bird flew onto her shoulder, sat for a moment, stared at the baby and flew away. It was a very exciting moment for all of us! I was not nearly fast enough with my camera to capture the moment! After the aquarium we had lunch and took a walk up a grassy hill to a lighthouse. It had a beautiful view of the marina and Queen Mary. As Uganda is a landlocked country, Adolf and Eva have never seen such large sea-faring vessels. Eva kept asking me to take pictures for her and Adolf kept running around trying to experience everything at once. All the kids enjoyed rolling down the hill in the grass. Ahhh…to be a kid again! 

The kids posing with the shark at the Long Beach Aquarium.
Checking out the interesting sea creatures.
Its snack time!

Finally, at the end of January, my husband returned home and we were so excited to see him again! I missed him a lot and it seemed like the kids missed him whenever they were in trouble. “Go to your room” was frequently followed by “I want daddy back.”

Homecoming! Everyone wanted to hug daddy at the same time.
Lots of love!
Scott and I at the beach. I am so happy he is home. (Photo credit: Miggy Photography)
We leave for Tahoe tomorrow afternoon and I am so excited to spend a week together in the snow. I grew up in the northwest and desperately miss the cold winters. It is such a warm cozy feeling to be inside when it is snowing outside. I love sitting by the fire, doing puzzles, playing games, and reading books. I am so thankful we get to have this trip and time together, although, in reality I don’t think I will be able to spend much time curled up by the fire engrossed in a book. 

I will post more stories and pictures when we get back. In the meantime, below are some pictures of our daily life! Enjoy. 

Eva making pretzels with Hayden and Maverick. I love how Hayden is standing on the counter.

Grocery shopping. That's right. We had five carts and always get a lot of looks.

Eva and Adolf making Uganda style chicken for dinner. Adolf was so excited to share his country's recipes with us.

Unlce Laine says this is REAL Uganda style chicken! (Photo by Uncle Laine)

Sunday, January 6, 2013

Happy New Year

Happy New Year! I am so grateful the world did not end in 2012 and we can all continue on with our normal lives, unless, of course, you are superstitious of the number 13, then you may have some problems for the next 365 days. We decided to celebrate our survival of Armageddon by heading to Pasadena for the Rose Parade. The first New Year I spent in Southern California, I went to the parade, camped all night on the street with friends and vowed never to do it again. Well, that vow only lasted 10 years. 

This past summer a group of students from Duke University spent their summer volunteering at Adolf’s orphanage in Uganda. One of the volunteers is from Pasadena and was home for the Christmas holiday. She invited our family and Uncle Laine (a Duke alumnus) to sit with her family during the parade. It was perfect! They saved us seats, a parking spot, and breakfast. All we had to do was show up before the streets closed at 8am. She even held a sleeping baby Hayden for most of the parade! Eva loved the floats and wanted me to take pictures of every entry for her scrapbook. My personal favorite was Tow Mater! Uncle Laine introduced silly string to the kids and they had a great time squirting each other. Thank goodness he didn’t buy one of those loud trumpets! Although, it was cool in the morning, it turned out to be a beautiful day and enjoyed by all, although, I was missing my husband who was away on Navy duty. There was one float carrying a recently reunited military family that was particularly hard for me and made my heart ache to be with him. 

Hunter and Adolf waiting for the Rose Parade to begin.

Eva enjoying the Dole Pineapple float

My favorite! Tow Mater!
Before my husband left for Navy duty, we were planning on renting a cabin in Tahoe for the week so we could introduce Adolf and Eva to the snow. Even with Uncle Laine joining us, I still didn’t feel comfortable taking such a big trip without my husband, so we decided to stay home and enjoy our time together here. The kids entertained themselves with all their new Christmas toys. We also spent lots of time at the various parks in our area. Adolf LOVES going to the park. I think it reminds him of the open countryside he enjoyed in Uganda and the ability to roam free. (Well, not completely free, but the kids spend a lot more time outdoors there than they do here.) He also got a new scooter for Christmas from one of his classmates. He still can’t bend his knees so he has been unable to ride his bike, but he has been zooming around all the trails at the park on his scooter. 
My boys enjoying a beautiful day at the park.
Eva loves her babies!
Baby Hayden enjoying the swing

Hunter, Kelly, Maverick, and Hayden on the big teeter-totter. Adolf was riding his scooter around and wouldn't stay still long enough to get a picture!

Eva trying out Adolf's scooter in our driveway.

Adolf taking the scooter for a ride on our sidewalk.

For Christmas, we bought Eva a Learn To Type program. She has been a very studious student and practices everyday. Learning to use a computer was one of her goals during her visit.
I tried to keep the kids occupied this week, but there was a lot more down time than they are used to during the school year and I think it made Adolf really miss his friends in Uganda. It also didn’t help that he and Hunter were arguing a lot and getting on each other’s nerves. Last night after baths, stories, and wresting the five kids into bed, I crawled into my bed to enjoy some much needed rest and relaxation. Ahhhh….peace and quiet until…knock knock at the door. I opened it to find a sobbing Adolf. (Just when you thought this blog post was going to be happy and uplifting!) I sat him on my lap, hugged him close and he wept, “I want to go home. Right now.” I replied, “Adolf, if you want to go home, you can; however, you are here to get your legs fixed. I know it is hard, but if you go home now we will not be able to finish fixing your legs. What do you want?” He looked at me with solid resolve in his eyes and said, “I want to fix my legs.”  I then tried to distract him by showing him the pictures of Uganda that Uncle Laine had posted on Facebook and he told me about each one: the people, buildings, trees, activities. After about an hour, I took him back to his room and sat with him until he fell asleep. That night, I didn’t get my relaxation time, but I got something much more important. I got to express compassion and love to a heartbroken child. That is a memory that will last much longer than any episode of Honey Boo Boo.